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When I Wish Upon a Star… My 3 Wishes

June 6, 2014 by Ashley 1 Comment

Weee! Another day is here and this is another fun little post from the BE Society’s June Challenge.  We have a few people linked up, but can always use some more.  So, go check out the challenge for this month and while you are at it check out all of the BE Society June Challenge posts that I have written so far.

June 6th – If you could have 3 wishes, what would you wish for?

wish

Out of all of the posts so far this one is very tough for me.  You would think that making three wishes would be a lot easier that it really is.  I guess it could also be me over thinking things which is completely plausible, but I want to take this seriously as if I was actually getting the three wishes.

1.  A cure/treatment for Charcot Marie Tooth disease.

2.  Monthly payments of $3000 monthly to live off of.

3.  I would save my third wish so that I could use it in a time of need.

After deciding on my wishes they seem very selfish, but I think most people’s wishes would be.  To me these wishes would be the best things ever.  I would be happy to  be able to do the things I love because of monthly income that would make it so that I could live comfortably.  The cure/treatment for CMT is a given since myself and so many people that I know are affected by the disease.

Filed Under: Featured Tagged With: BE Society, BE Society June Challenge, Charcot–Marie–Tooth disease, CMT, Conditions and Diseases, Health, Peripheral nervous system

The CMT Foot

April 15, 2013 by Ashley 4 Comments

How is the CMT Foot different from the average foot?

Pes cavus
Pes cavus (Photo credit: EUSKALANATO)

I know many people ask me how my feet differ from everyone else’s and they often ask this because they never see my feet. I tend to always have socks on my feet because they are so chilly.  Most Charcot Marie Tooth feet are what doctor’s call a Pes Cavus foot.  Before I took medical terminology in college I did not actually know what this meant.  All I knew what I have a Pes Cavus foot.  Isn’t that awesome?  It told me a lot… NOT.

Now, I was so excited to find this picture because it is going to show you a lot of what I am talking about.  As you can see the long bone in the arch that the big toe is attached to drops down drastically which the average foot does not have.  This bone placement is what causes the high arch of the foot.  You can see the difference in the second image that depicts the average foot.  You can see that there is a drastic change in the arch and toes as well as tendons of the foot.

Normal foot
Normal foot (Photo credit: EUSKALANATO)

Now that we have looked at and talked about that I want to point out how little of the foot actually touches the floor.  One day I want to get some paint and make my foot print on a piece of paper to show you just how little of my foot touches the ground and causes much of the balance problems that I have because of the CMT.  You can kind of see how little touches.  The foot will touch down on the heel, toe base, and along a thin line on the outside of the foot.  In addition to this “hammer toes” is very common among CMT patients where the toes curl and only the tips of the toes touch the ground.

A great way to show you what this feels like is to take your hand and put all of your fingertips onto the tabletop in front of you.  Your fingernails should be touching or almost touching the table and you now put weight down on them and you can get an idea of the kind of pain  that comes with standing on toes like that all of the time

Filed Under: Featured, Health Tagged With: Charcot–Marie–Tooth disease, CMT, Conditions and Diseases, feet, Foot, Health, Peripheral nervous system, Pes cavus, Photograph, Toe, United States

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