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Lean In When Making Healthcare Decisions Thanks To Healthgrades

July 19, 2013 by Ashley Leave a Comment

I participated in a campaign on behalf of Mom Central Consulting for Healthgrades. I received a promotional item as a thank you for participating.

Healthgrades Excellence Award

Healthgrades Women’s Health Report 2013

According to Healthgrades, as women we need to “lean in” when we are making health decisions.   I agree with Sheryl Sandberg, COO of Facebook, on this one.  She wrote a book that really popularized this idea to “lean in” when making health care decisions to get the best results.

Rather than proceeding blindly and assuming healthcare is equal, women should take action, ask questions, investigate options, and challenge the health system to provide them the best care possible. (Healthgrades Women Report 2013)

Being a woman who has always had to frequent physicians on a regular basis including many specialists I know just how important it is to take action and research exactly what options are available to you.  The report evaluates clinical outcomes for women not only in the female-specific specialties of maternity care and gynecological surgery, but also in orthopedic, cardiovascular, and critical care.

I was thrilled to see that in their study outside of maternity care and gynecological surgery they also studied the top 15 common hospital-based conditions and procedures.  In the second half of the report they list the top hospitals in all 50 states that excel in the care of women with these procedures.  Michigan has quite a high number of high rated hospitals.  It appeared like it is in the top 5 states with the most high rated hospitals.

One of the Complications-Based Procedures  that was included in this study happens to be for a procedure that doctors have been telling me for years to have done.  Back and Neck Surgery both fusion and everything expect for fusions.

healthgrades

You can see my last back x-ray that was taken in 2006 of the kyphotic curve in my spine. You don’t need to be a doctor to realize that a curve like this isn’t normal.  The average spinal curve for the thoracic spine (upper spine) is about 30 degrees whereas you can see that my spine about 7 years ago was at 95.3 degrees.  From what I have been told just from physical exams my spine has curved even more since then.  This could be because of a bunch of different reasons.

back 40 yr oldThis second picture is just to give you an idea of what they are looking to do with my spine.  This is an example of a 40-year-old woman who has a 120 degree curve of the thoracic spine.  This woman had a successful surgery with two rods and screws surgically implanted to each vertebrae.  She was brought back to a neutral curvature of the spine.

The reason that I have not gotten the surgery yet is (1) because it is very expensive and I do not have the money to fund it and (2) there is the fact that the woman’s physique is so different from the male physique that I am worried there could be simple complications from someone over looking that fact.

The differences between men and women span everything from the composition of bone matter and the experience of pain, to the metabolism of certain drugs and the rate of neurotransmitter synthesis in the brain.

Yet many women do not know that they are more vulnerable to some diseases, may have different symptoms, or react differently to some medications. Unfortunately, sometimes doctors and hospitals don’t recognize those differences either. (Healthgrades Report 2013)

I find it very important to understand the unique health risks that women have so as to prevent complications from occurring and help prevent unnecessary hospitalizations from also occurring.  I have seen on a couple of instances in my life when female friends ended up back in the hospital because of complications that could have been preventing.  Most turned out fine, but there was one person I can think of where it resulted in her death.

Please be educated and “lean in”: take action, ask questions, investigate your options, and change the health care system.

I encourage you to download Healthgrades 2013 Women’s Health Report: “Lean In” When Making Healthcare Decisions to Get Your Best Outcome and use it as you make decisions on your family’s health providers. This report evaluates the quality of healthcare for women in American hospitals and recognizes top-performing hospitals throughout the country for their achievement in addressing a variety of women’s health issues.

Have you ever used Heathgrades to look for new doctors?

Related articles
  • Be Informed with Healthgrades
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  • Gundersen Lutheran recognized for Women’s Health Excellence
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Filed Under: Featured, Health Tagged With: Facebook, Health, HealthGrade, Healthgrades, Mom Central, Sheryl Sandberg, Surgery, Thoracic vertebrae, United States, Womens Health

Seriously… Secondary Infertility Endometriosis What?

June 11, 2013 by Melissa Cwynar 2 Comments

EndometriosisAs if my story ended with the PCOS life had to take a wicked turn. That beautiful little Christmas baby is older now and I wanted another child, as I told my story about her and her father passing away, I am now into the future in another relationship and the discussion of having another child is there.  We know we will face battles, but lately I have been worn down, very tired and for some off reason sex is very painful now.

 

Back off to the doctors, they can’t figure out what’s wrong, go figure this is starting to become a pattern with doctors not knowing anything. Keep in mind I am being shipped off to Pittsburgh where some of the top doctors are. I have seen all types at this point and many different gynecologists, including a female who was ex marine and she was enough to put me off seeing gynecologist’s period. I swear she thought she could.

English: Pills Polski: Pigułki
English: Pills (Photo credit: Wikipedia)

 

Off to a new doctor, who tells me everything I have sounds like Endometriosis. He decided drugs where the choice of treatment. I was given everything under the sun, but the biggest was Lupron shots, which I gave myself, it was horrid I ended up with so many side effects and his idea of treating those where MORE meds!!! I was on so much, I was run down and miserable and then I had a TIA, which is a mini stroke from all the medications. I was done, I went off them all and said I would suffer, but during the course of all this the Endo got worse and the pain was debilitating.

 

I ended up having to see a pain specialist who started me on Percodan, that’s basically Percocet without the acetaminophen in it, since I am allergic to it. For those that don’t know, acetaminophen is the main ingredient of Tylenol.  When that stopped working they moved me to oxycontin, then to dilaudid and finally to a fentanyl patch.  I was a drooling idiot, but I was pain free. I was also missing out on watching my daughter grow up, she was between the ages of 4 and 5 while all this was happening. I couldn’t even make it down a driveway without falling asleep and drooling from the fentanyl. Enough was enough, I decided I was going to let them do more surgery at this point, we are up to about 16 surgeries between the endometriosis and the PCOS so why not another to have them “scrape” the endometriosis out.

 

Now this is where my story gets a little crazy. I am admitted into the hospital, pre surgery and a couple comes into my room and asks to pray over me. At this point, I don’t care what religion comes into the room, if they want to pray so be it, I am in pain and I just want it to stop. They pray over me, the woman has her hand on my forehead the entire time. I am a little freaked by this, but Eh, whatever.  I was raised Roman Catholic, later converted to Christian, but I can honestly say, while the prayers were of a Christian nature I had never heard anything like this before. It was also my first experience with someone talking in “tongue” which really freaked me out if you’re clueless about it.

English: localisation of endometriosis Deutsch...
English: localisation of endometriosis (Photo credit: Wikipedia)

 

Okay back to the morning of surgery, I am prepped I am ready to go; they still have me on some heavy meds so I am very groggy.  I remember being wheeled down, but that’s it. When I woke up, I was still too medicated for the doctor to talk to me, so it wasn’t till that evening it comes into my room, sits down and says, well we have a problem, but it’s a good one. How is any problem a good one? I mean seriously, the word good and problem should never be in the same sentence.

 

So here is my good problem in a nut shell. When they went in to clean up the endometrioses, (oh and btw, it wasn’t just in the female areas, I had it also in a cavity in my back, on my kidneys, liver and stomach.) they found absolutely none!

 

Gasp! What? Now what’s wrong with me was my instant thought, how could I go from being the worst case the doctor ever saw to having absolutely none? Was it the power of prayer? Who knows, I have my own personal feelings on that, and don’t want to make this a religious post. But, they prayed, it’s gone and to this day I have never suffered from endometriosis again!

 

I was able to get pregnant straight out the gate, but sadly I lost the baby at 8 weeks. We had moved and I was seeing new doctors, the one I thought was good until I lost the baby and was crying and he decided to be rude and tell me “Oh well, it happens, get over it” How do you ever get over something like that, when you have been trying for years.

 

4 months after that I got pregnant again, I had a very harsh pregnancy and kept going through early labor. I was put on terbutaline to stop the contractions, at one point I had to be given shots of magnesium sulfate and let it be known that they where to save the baby over my own life, due to the fact this medication can have very bad effects on the mother and the mothers heart. Luckily we were fine, I suffer from heart problems now, that they think where aggravated by the magnesium and just made hereditary heart problems show up earlier then they would have.

 

I had so many early labor episodes, when I finally went in to have her nurse was sort of cold towards me and told me I was not in labor. She checked me and I was 1 centimeter and she was not even willing to call a doctor. She sent my husband down to get discharge papers. I was hitting the call bell screaming I had to push and she told me she would “humor me” and check. Well she checked me, and the baby was crowning, she had my husband called for to get back to labor and delivery stat, and she called my doctor finally, but he would never make it on time. I was seeing a high risk pregnancy doctor and a neo-natal specialist were supposed to be on call when I delivered. Due to this nurse’s action, the only person they could get there was a midwife, not knocking midwives, but she was not equipped to handle a delivery like mine with all the complication. She barely made it though; my daughter was delivered in a bed that was not prepped, by a nurse who kept demanding I not push. Sorry, women have been delivering babies for centuries and when its time, its time.

 

That little girl I was carrying is now 9 years old, active and for the most part healthy. She does have three forms of epilepsy, but, it’s managed with medicine. I would include a picture of her, but her father and I are divorced and our court order states her picture cannot be posted online, unless it’s private.  You will just have to take my word on the fact she is one of the most beautiful kids in the world.

 

Do you think this story ends here? Hardly, I wish, but it doesn’t. This is just one more installment in the long battle I have had with infertility issues.

 

 

Related articles

 

  • What Causes Infertility in Women?
  • Endometriosis – No Fun For Anyone!
  • Women With Low BMI are More Prone to Endometriosis
  • My gyn blew off my concerns. She was wrong. What now?
  • Infertility May Mean Endometriosis

 

 

Filed Under: Featured Tagged With: Body mass index, CFEngine, Endometriosis, False accusations, Health, In vitro fertilisation, Infertility, Light List, Men, Menstrual cycle, Microsoft, Nurses' Health Study, Pain, People, Pittsburgh, Polycystic ovary syndrome, Pregnancy, Surgery, Symptom, Tylenol, Uterus, Violence and Abuse, Wikipedia, Womens Health

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